Well, the AP is now officially a resident in the care home. The LSO and myself are hugely relieved for a variety of reasons, not least that we have our freedom back but what I now feel has come as a real surprise. She is well looked after there and seems to be quite settled which is all good.
I thought I might feel an element of guilt because I was so pleased not to have her presence in our home and also to have our space back but instead I realised that the main emotion I was experiencing was anger at having lost more than five years of our lives in such a miserable way. I actively did not want to see the AP and found this a most disturbing feeling. We are still discovering that we can do just about what we want and it struck both the LSO and myself that because we have been so trapped for so long we had actually become institutionalised. But yesterday having discussed how I was feeling with a friend who understood our situation I woke up this morning feeling much more at peace and far less antagonistic towards the AP. That has to be a positive and I am determined that the LSO and myself will make the best of the time we now have.
I have set a deadline for a new eating regime to begin on Monday; we have a friend staying until Sunday and after that I will start to attempt to lose weight in earnest. I have come to the conclusion that because no diet is really sustainable in the long run I will mix and match, starting with the 16:8. I will still do low carb but include on non fast days, a little potato or rice, potatoes because I really miss them and rice only occasionally because it definitely improves the gut function. Not a strict Keto because I will become bored with that and give up. I need to have space to enjoy meals out and to discover my love of cooking again which after the pickiness of the AP took a real battering. A return to swimming is a must as well as walking the dogs now that the stifling temperatures have reduced.
It’s a wonderful feeling to be looking forward to the future and to finally realise that we have reached the light at the end of the tunnel and it isn’t the train hurtling towards us.
There are few words that can describe the last six weeks. We have somehow weathered the AP’s childish attitude and tantrum that put her in hospital for sixteen days. After numerous blood tests, chest and stomach X-rays and finally a CT scan of her head there was found to be nothing wrong with her other than the fact she is a hundred and one years old and suffers from arthritis. Inevitably there has to be some degradation at her great age.
The vomiting, the inability to eat and finally the ‘EXCRUCIATING’ pain in her leg have all vanished. So what was it all about? Incredibly it would appear to be a perceived lack of attention from us and all in general that created this unstoppable hysteria. Needless to say she has done herself damage both mentally and physically but she seems to be happy enough after her first week in the home, getting lots of attention and with people around her. There have also been friends and family visiting most days which has eased the pressure on the LSO and myself. These are all plus points because the AP will be staying there, she is just too frail for us to care for her now and we need our time and space back.
We are now just starting to come down from what has been five and a half years of misery, of being utterly trapped with no personal space and no privacy. But the most interesting outcome of this whole sad business has been the knee jerk reaction from various ‘friends’. The minute the email went out saying that the AP is now in a care home having spent a couple of weeks in hospital, we had several responses from people wanting to rush over and inevitably expecting us to entertain them in our Irish B&B, they stay, we pay. Where were they all when we really needed help? When the LSO was seriously ill two years ago, did anyone offer to come and get the AP, take her with them for a short holiday to give us a rest and the LSO an opportunity to recuperate? No, of course not. They were all happy to use us as a staging post, an overnighter with full board included and apart from my cousin and his wife in Scotland there were no offers of any real help from anyone else. Now she is in a home and we don’t need help they are wanting to rush here having made little effort for years and all because she might be about to depart this mortal coil. What a sad state of affairs, at her age it could happen at any time.
Fortunately those who have made an effort over the years have given a more measured and thoughtful response. Some have commented on the need for us to find tranquility and others have emphasised the importance of making the most of our freedom and enjoying life together. There has also been the understanding that we have done so much above and beyond what was required and they are thankful we were prepared to do it. Actually sacrifice is more a word I would use since the LSO and myself have lost a large slab of years at a time when we couldn’t afford to lose them.
I probably sound to anyone reading this to be bitter and twisted but at the moment I am tired and emotional, still experiencing anxiety attacks and in need of a real rest and a break. Fortunately time is a great healer.
Things are certainly changing for all of us. The AP is becoming dottier by the day and seems to be retreating into her own little world. We have had her getting ready to go to appointments on days when there are none, mixing up times and places and then making up stories to fill the gaps in her memory. Lately she has started to eat her food with her fingers and holds her head in one hand as if it is too much effort to lift it up all of which infuriates the LSO but she only does it with us. If we have visitors or are out for a meal she uses her knife and fork.
Yesterday she announced that Serena Williams was Venus Williams mother and further more it must be true because they showed pictures on the TV to prove it. We explained they were sisters and far too young to have grown up children but what do we know! I guess all of this is normal in someone of such a great age in fact we are lucky it isn’t worse. Although it is quite difficult to be wholly positive when trapped in this alternative reality both the LSO and myself fight not to become too down or despondent as time slides by at a snail’s pace.
It isn’t all doom and gloom though, the plants in the greenhouses are flourishing and I am making cucumber relish for the first time. Years ago we used to buy a Dutch version of this relish then it just vanished never to be found again so I am hoping that this homemade version will be a good replacement. The warm and sunny weather has encouraged good growth and this year our fig tree is bearing many fruits and those will be a joy to eat. At this point the LSO points out that the lawns and hedges are also growing at speed, but I guess, looking on the bright side, we do have some good things to look forward to.
Today is our daughter’s forty-fourth birthday. It is a stark reminder that time is slipping rapidly by and where have those years gone? We both remember the great joy we felt when she arrived and that feeling has remained constant to this very day.
Four is the number of stability and it just happens to be my life number. Pythagoras called the number four the Tetrad and believed it created perfect harmony so our lovely daughter has a double dose of stability and harmony this year.
It set me thinking about what we have to be grateful for in our lives and I would say our two children, their partners and our three grandchildren are pretty well top of the list but there are also other things that have made our lives good together. The LSO and I are lucky to be in this lovely home, we have good friends and although life has not always been a bed of roses we have survived almost fifty years of marriage and fifty-five years of friendship, in fact it will be our Golden Wedding next year.
I found myself breathing in slowly and deeply whilst contemplating all this, letting go of the stress and finding that we have much to be positive about and somehow, instead of moaning about how stressful everything is I need to find a way to harness these current emotions and to stop being a reflection of the depression that can sweep over us both. It would be going too far to suddenly become hugely compassionate because the five years of criticism and manipulation have left an indelible mark but I do not want our situation with the AP to define who I am or in fact who we are. Life is just too short for that.
Now back to the diet and hopefully my determination to succeed will not be ambushed the minute the sun sets over the yard arm.
In the mornings the LSO always brings me a cup of tea in bed and has done so since we both retired thirteen years ago. It’s a real treat, having worked all my life I make the most of the peace and quiet usually indulging in a few games of Gin Rummy on my phone. How decadent is that!
But during a moment of contemplation, having lost more games than I had won I realised just how like a game of cards our life has become. The AP is a general pain in the neck being some of the time aggressive and difficult, making up stories to justify things and those moments represent the games lost, those are the losing days. Other times she can be pleasant, amenable and cooperative and those are the winning days but are seldom experienced unfortunately.
She announced the other day that the LSO and I had no idea how poorly she has been since stumbling at Keep Fit and sitting on her bottom. We do have her living with us so are well aware of her state of health and she has seen a doctor, been taken to the hospital and had x-rays that proved no damage had been done, so I asked when had she been so poorly? Then the LSO asked her to define what ‘poorly’ means to her and this did cause a bit of a rumpus as she truthfully has not been ill and in fact is extremely fit and well given her great age. Truth be told she would rather not go to Scotland and was hoping to get out of the month away. She really doesn’t see why the LSO and myself need a break from her and in fact doesn’t care that we need some time on our own, we are there just for her it would seem.
It was pointed out to her that if she was that ill she needed professional care something we as amateurs are unable to offer and indeed, are not prepared to do anyway. We would need to get her assessed and then decide what the best course of action would be and ultimately it could be a Care Home and this statement elicited a very nasty response which was “Well, you’ve finally got your own way”. Nether of us had any idea why she should think this or what she meant, if it was the case she wouldn’t have been living with us for the last five years. It just made us feel once more that we have lost five years of our freedom at an age when we should have been enjoying our lives as much as possible.
The end result of all this was that she was told in no uncertain terms that she would be going away and when back we would discuss the options available to her. We are now enjoying a short winning streak.
Her suitcases are down from the loft and we have fourteen days to go.
Its strange how things happen in life and although I would like to think there is a purpose to everything I realise as I get older that often most happenings are random events. It is best not to read too much into any occurrence or from what people say or what they do.
Many, many times over the last four and a half years I have woken in the night and wondered why we made the decision to have the AP to live with us. What possessed us to take someone who is so domineering, who can be so utterly unpleasant and who has become a stranger to us, into our home and our lives?
The more I dwell on it the less I know so after a great deal of thought I have made the momentous decision not to question our act of sheer stupidity anymore. I am going to look at each day that comes as a step forward and I am not going to look back. As it is, I have now developed strategies to prevent the AP controlling, bully or irritating me which has made a huge difference to my health and well being. Although in the midst of saying all this, part of me will never come to terms that my own mother would try to subjugate me and destroy my marriage. Why would you want to do that to your daughter? It’s unbelievable that every now and then she still tries to gain some control over both of us and in particular, me. In one respect because we are stuck here having to be her carers, she actually does have the ultimate control. We have no freedom, no personal space and no privacy. You would have thought all that would be enough!
Indeed on that rather sad note I realise that the LSO and I need to get some pleasure out of the life we have together, to experience joy in living however small, even given the restrictions of having to look after the AP. We are both remarkably fit for our age and need to give thanks for that because compared to many we are lucky. It’s just finding ways to do it.
I also really do need to find some space to do the right things to move my diet forward too. At the moment I am still on a plateau moving neither up nor down which in itself is a reflection of our lives. I know that things can’t go on forever, that situations are always changing even if sometimes only slightly. We have visitors coming to stay at the weekend which will bring on a load of gushing and pretence from the AP but after that I must do some serious planning.
This part of the year can be a bit depressing being generally cold and often grey and gloomy so it is even more important to be strong, go with the flow and keep moving in the right direction in every aspect of our lives.