When life hands you lemons…..

….make lemonade or preferably add them to a G&T.

Well it just has, but no matter how much lemonade or gin I drink it won’t change the situation or make it better.

We had survived the five long and difficult years when the AP was living with us, then we were planning how we would spend our time and Covid-19 came along. No problem we said, lockdown is similar to the years living with the AP except we didn’t have to cope with her intransigence. We came out of it all a little wary but determined to get more out of our latter years and then, wham! A curved ball came out of the blue and left us shell shocked.

The LSO has cancer, not any old cancer but a rather rare one, he has a tumour in his tongue. He’s never smoked, never been a heavy drinker but has enjoyed his real ales and equally fine wines, isn’t overweight and thanks to the two Jack Russells is pretty fit for someone of 76 years of age.

So how did this happen? The consultant says its basically the luck of the draw!

Well, all I can say is thank goodness the LSO is not a gambler.

It has changed our lives completely. The operation was a demanding twelve hours, during which the tumour was removed and the tongue rebuilt using flesh from his thigh then it was ICU for 5 days before a move to a HDU specialising in Head and Neck for a further 2 weeks. During these challenging months the LSO inevitably lost weight but did a good job of recovering, even on a liquid diet, gaining three quarters of a stone from leaving hospital until the Radiotherapy began. Then 3 weeks in, having had 15 sessions, the side effects began to appear. By the end of the 30 sessions he was suffering from severe burning and pain in his mouth, tongue and throat making eating and swallowing incredibly difficult, leading to further weight loss. Morphine has had little effect on the pain so Fentanyl patches were added for further relief. These too had little effect so it was suggested by the radiologist that these be doubled every three days. That was last night and things do seem ever so slightly better.

Apparently the side effects keep ramping up after the treatment ends though for how long no one knows because everyone reacts differently to this brutal treatment.

Where do we go from here? Well we can only go forwards and handle the situation with grace, positivity and remember that humour is a great healer. Although at the moment the LSO is struggling and I feel weary, utterly exhausted and just a little battered and just hope we can both find the laughter we have enjoyed as a couple for 58 years returning to buoy us up.

….and the AP? still sailing on at 104 years of age.

Another crossroad.

All through life we come to crossroads where decisions are made working with conditions we are living with at the time. Later retrospective views often look as if other choices should or could have been made to have a better outcome. Oh the joy of hindsight! How many times have we all said and have heard others say too, if only……………….. then everything would have been better.

But that thinking is always skewed because it is how we want to see things and it is a mistake to look back and have regrets. We are never going to be able to go back and have another shot at the way we live our lives.

Recognising mistakes is a different matter. I regret ever having the AP living with the LSO and myself but we made the decision, had five utterly dreadful years but they are past and gone although the AP still sails onwards. She is heading towards one hundred and four years of age and is quite oblivious to anyone or anything much in her life, she really has become the centre of her own universe.

It has taken me over two years to get rid of the angst created by her attitude and adjust to a better life and to realise the importance of pushing all regrets away and to avoid looking too far ahead. There is nothing to be gained by second guessing or wishing for the unattainable. We are luckier than many and although in our mid-seventies we are remarkably fit and well and hope to remain so for many years to come. We have finally made the monumental decision to sell my car and go down to one which was quite an emotional moment. For more than forty years I have had my own transport and been totally independent so I have had to make a shift in my perspective, as has the LSO and be prepared to plan things with thought for the other.

On the subject of nothing gained I am still on a plateau with my weight loss, not going up but neither am I going down. It’s a strange kind of limbo land of dieting but I am not despondent about it, just endeavouring to fool my body to shift its set point.

It will happen, I just must be patient.

Reflections.

Not reflections in a mirror, more about taking a step back and reflecting on the progress I have made in the last five months. This is not just about weight loss which has been slow but steady but it is also looking at the place I find myself in now.

My studio has been de-spidered by the LSO and is ready for action and after much thought I have decided to approach the whole experience as an extension of this new place I have reached. I will go with the flow.

I have lost 33lbs to date and a further 25 lbs will put me in a truly healthier zone but it is what I have realised about myself that is most surprising. I have yo-yo dieted for years, lost weight, gained weight, wallowed in self pity as the pounds plus rolled back on but never achieved how I feel now. I am actually at peace with the need to lose weight, less frantic and definitely more in control and more accepting that it will happen but not in the short term. It will take time and during that time I will enjoy life, inevitably taking the occasional step backwards but I now understand it’s all part of the journey.

I have positioned the easel, put a fresh canvas on it and am ready to paint but what? After much deliberation I decided to look through the photographs of skies that the LSO has taken. There are hundreds of them so I was definitely spoilt for choice but I found a sunset in soft purples, pinks and gold which resonated with the way I feel at the moment.

Can this new sense of emotional freedom last?

We have an outdoor visit on Friday to see the AP.

Will I remain calm cool and zen-like?

I’ll let you know.

Mindfulness.

Well, here I am almost four weeks since my last post and the 16lb loss is now 24lbs off but I have reached a bit of a plateau which I refuse to be down about. I do need to move a bit more but I am back to swimming twice a week and I have resorted to doing some stretching exercises only intermittently and have bought some resistance bands. I just need to read the book and then remove them from the wallet they are in, they are way more effective that way!

Lockdown has done me no favours and I am sure many can equate to this feeling. I have definitely become a bit of a couch potato and the very word ‘exercise’ can reduce me to a jabbering wreck, full of endless excuses as to why I should avoid it.

Also whilst battling the little devil that sits on my shoulder I am trying not to look too far ahead because then I might just cave in due to the enormity of the task facing me. I need to lose a further 42 lbs to be in a true health zone and to become non-diabetic as well as fitter and just as importantly very much happier in my skin.

So I am taking small steps and enjoying my new mindful eating and the fact that I can now bend over and pick things off the floor, bonus.

It’s the word ‘mindful’ that intrigues me. Has anyone else noticed how often it creeps into so much literature. It’s obviously a new buzzword, an all encompassing word to take the place of others, such as meditation, stress busting, good old fashioned awareness among but a few. There is even a mindful chef!

But being serious it’s interesting how I have found that mindfulness when applied to eating can actually make a difference. Also I have never, until recently been quite so aware of how the past seven years have impacted on everything to do with our lives. How overwhelmed we have been by it all and how the circumstances that brought about a great deal of unhappiness, distress and in my case, illness could have been avoided if the LSO and myself had been more mindful and more fully present in our own lives. The AP would not have come to live with us and we would both have had fond memories of her. Sometimes it is not right to do what seems to be the right thing, the attempt to offer her warmth and kindness fell on stony ground. At some point we should have put our own needs first.

Now I am struggling to even ring her nevermind go and see her which is so sad; so it’s definitely a time to meditate before making the call. Will it work?

Hopefully.

Stagger Onwards Rejoicing.

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