……….that breaks the camel’s back or so the old adage goes and it is so true. I am trying to be positive but sometimes feel the tide is against me. The pain in my calf continues to cause me distress, it does go away when rested but returns the minute I begin walking. This is not helpful when what I need to do is get regular exercise and all I can do is limp slowly, painfully and miserably. I’ve always said its better to have spots then at least they can be seen and elicit some sympathy or do I really mean some acknowledgement that you really are not right, sympathy just makes me weepy. Then just to make things a bit worse the lady who cleans the house once a week is not coming on Wednesday and we have visitors arriving and commitments that take us away from here.
I know it’s all a bit pathetic and gammy leg or not I am sure I can manage to vacuum and dust and the LSO will clean the bathrooms, so the bedrooms will just have a flick round and stairs won’t get done but does that really matter? The kitchen is huge but apart from the floor it is always kept clean so what’s the problem? Frustration at feeling so trapped at the moment not just emotionally but physically. I do feel a bit overwhelmed sorting out my diet but just generally feel under the weather.
The AP is ok still and really trying to be pleasant. Occasionally the mask slips but we come back later as if nothing has happened.
Four weeks tomorrow we will be beginning our four week break from the relentless routine that has become our lives. I know we must not wish the time away as life is short but in this case I am counting the days.
I am beginning to slowly understand the challenges in front of me. I have purchased several books now on coping with Type 2 Diabetes. All are informative and two are most useful as they give specific recipes. During this early stage of discovery I really do need guide lines. I am back to walking the dogs but slowly as the pain in my left calf is still apparent but not as cripplingly painful as before and hopefully next week I will fit in more than just one swimming session.
The AP is being good at the moment and is making an effort to be pleasant which makes life considerably easier, I have no idea where this niceness is coming from and find it slightly unnerving as I wait for the next barb to be fired.
Today we visited one of the two consultant at the hospital involved in the ‘long suffering one’s’ illness. From now on to be referred to as ‘LSO’. Although he is much, much better and improving there is still some oedema evident in his sitting bone and the Consultant wants to see him in 6 months to see if all is still good. He gets very tired and this is a direct result of having been so ill. The Colorectal Consultant is like a breath of fresh air, honest, open, direct and very thorough. It would be difficult to ask for more. We have the next appointment with the Orthopaedic Consultant on the 11th September
Looking back at the last three years has seriously been an eye opener. From having had endless choice in what to do and where to go, ‘shall we have lunch’ out today to ‘I fancy going to the game fair’ we now have no freedom to choose. The stress factors have been off the scale and the demands made on us have been continual and with little thanks. I realise now that the last three years of such stressful circumstances have taken a huge toll on my well being both in a physical and an emotional sense and this is partly and possibly wholly responsible for the state I find myself in. I must not allow things to cause me further distress and the AP must learn to fit in with us now.
At the end of all this we need to come out of all this intact as a couple, we cannot allow someone we have brought into our home, who is incredibly well looked after and cared for, to drive a wedge between us. On the occasions that the AP has tried to cause trouble between us in the past, almost a divide and rule complex, I have been more than stressed and upset and have had to say something to stop any reoccurrence. This in itself does nothing for my cortisol levels.
This situation must not define us and I must gain control of my own body.
Easy said I guess but I am trying.
A single word that is alien to me. Since my diagnosis of Type 2 Diabetes I have been reading as much as I can about the disease and how to cope with it.
As a working mother all my life with two children and a husband with a demanding job I never really had time for ‘me’. I retired eleven years ago and found it an exhilarating experience. My husband retired a year after me and we never looked back, we made the most of the early years. Seven years ago we moved away from the South East of England to a much better life in Norfolk but because we left our family behind we upsized rather than downsized. If we had stayed in the South East my mother would not be living with us because that house would have been too small for us all to live together.
Do I regret the move? No not really although I would have preferred to see more of my children and grandchildren but on the other hand I count myself lucky that until seven years ago I had a great deal of contact with them. The truth is children have their own lives to lead just as we led ours and we do have contact constantly through technology. I sometimes regret the decision to bring my 99 year old mother to live with us but whilst she is pleasant, as she is at the moment I can face the days without too much trauma.
But back to the reason for the title of this blog. The word that comes over all the time when I am reading about Diabetes is ‘overwhelming’ and in a way I agree with that because there is so much to think about but what really is overwhelming is the need to suddenly put ‘me’ first. How do I do that when I have never thought about myself since being a teenager and on top of that, along with the ‘long suffering one’, we have to look after a 99 year old who cannot be told the problem?
Small steps first I think is the answer.
Well that’s a comfort is it not!
Ok, so now it’s official; I need a new body and as quickly as possible. Having developed a stress related autoimmune condition a year ago I have now been told I am classed as officially Type 2 Diabetic. Only just apparently! Should I be surprised? No, I have been prediabetic for at least two decades and my present state of being trapped has done nothing for me either physically or mentally so this is a real wake up call.
I really do have only myself to blame as the condition is in the family and I have been sensible about controlling it until the last couple of years. I have seen my weight climb steadily as boredom and frustration have taken hold. I have been in a state of self denial and using my situation as an excuse to eat too much of the wrong foods and on many occasions to indulge in too much alcohol.
Just to add to everything I have pulled a muscle in my calf which is painful and debilitating and is another contributing factor to the need for a new body.
At least in the midst of all this the AP seems to have realised her mistake of the previous day and is actually being reasonable and pleasant. Long may that continue although from past experience I won’t hold my breath.
In this case the royal ‘we’.
Well it’s been a good week with the grandchildren staying. They are fun and time consuming and a bit like having two Duracell bunnies under the roof. The AP had to be left for a few hours today when we delivered them back to parents and took over the dog for her annual holiday. We are now running a pack of three Yappy Jacks for the next two weeks.
We collected money for AP at the Post Office on the way back which has been meticulously counted; that facility is intact! We listened to her story about the dogs whilst the long suffering hubs made a much needed cup of tea which involved getting a spoon out of the drawer. AP was in front of this and poor hubs twice asked her to please move but to no avail as the story continued. I then asked her to move so that hubs could access a spoon and this was taken the wrong way. She obviously hadn’t heard hubs and then misunderstood me, screwed up the face and flounced off heading up to her room. It was a moment or two before I realised that AP had thought we had no time to listen to the story about the dogs and had not even realised that a cup of tea was being made despite the kettle being on. What have we done to deserve this and why would we be so deliberately rude. We often listen to the same stories over and over again, accepting that this is part of being old. If AP could just think for one minute she would realise that we are never that heartless but we are becoming heartily sick and tired of dealing with a Jekyll and Hyde personality. With us she is unpleasant, cantankerous, belligerent, childish and obstreperous but with other members of the family, friends and visitors we make an effort and are gushingly sweet and sugary and for a while can play the dear old dotty lady. This effort obviously exhausts her and we obviously don’t matter.
Oh dear, well the pleasant atmosphere lasted all of 15 minutes and the feeling of well being and contentment (an exaggeration) is over and we are back on the treadmill. It really is no pleasure in coming back to our own home. Roll on the 26th September and four weeks of freedom from this tyranny.
We really do keep trying to not become bitter and twisted but it is an uphill struggle. AP is unreasonable and childish and reacts without thinking. Her old colleague, who is actually younger than us, has departed today and I suspect AP is exhausted having talked non-stop for three days and only nodding off a couple of times. The ex colleague was given her life history in a rather garbled and roundabout way over the three days and she did well to withstand the onslaught even managing to get the odd word in now and again. Now she has gone we are back to the ‘I know” attitude in a blink without actually knowing anything of course. I thought it might have taken a day or two but no such luck.
So it’s back to bed changing, sheet and towel washing before the next arrivals and the next onslaught of planning, shopping and cooking. Oh, and not to forget the rafts of washing up and cleaning up. I really should be a shadow of my former self but it just doesn’t work like that sadly.
At least the next visitors include the grandchildren and are our choice.
Respite – meaning among many other things, pause, break, relief, intermission, relaxation, halt, reprieve, breather, let-up. This is something we get little of for 10 months plus of the year. I did think that having AP’s old colleague here would give us one or some of the above but this is not the case.
Decided yesterday to run them in to main city near us to visit the cathedral and have a lunch there. It seemed a good plan to give them time together and also to be doing something other than occupying the living room all day, that is except when being served the requisite three meals a day. It worked for them but it meant I had to drive for 2 hours in total to have 3 hours to clear a multitude of jobs before collecting them again. Was any thanks forthcoming from AP – no, only the comment that I had arrived back spot on time to pick them up. So not only am I chief cook as husband is chief clearer and bottle washer I am now a chauffeur, all unpaid of course.
Regret – meaning among many things, be sorry, to wish you had not done, distressed, rue, bemoan, bemoan, weep. The latter is seldom far away.
Must don my cap and apron and serve lunch.
Just keep on trying to be good and to be patient, that seems to be the daily mantra and hopefully if we repeat it enough we might manage to keep things on a relatively even keel. It really is difficult especially when you feel permanently on edge in the presence of the AP. It is not a good plan to analyse these feelings but sometimes you have to try to understand what is happening. The AP is not a bad person and for some of the time she does try hard to be a nice rather dotty old lady but unfortunately the halo slips and nasty little asides come out. These are often said to others sometimes in front of us but more often behind our backs. She has also become hyper-critical. Comments about awful hair styles, unattractive voices or peoples shapes – ‘hasn’t so and so put on weight’ is always a favourite and is inevitably a sly dig at me. No, I am not paranoid but the last three years of being told what I should do about my weight has made me very, very wary.
I do need to lose weight but I cannot face cooking and eating separate meals. I also cannot let her see me do it as AP then wants the same. AP cannot afford any weight loss and would become ill if she ate less than she already does. It is important for all of us that she remains as active and as fit as possible for as long as possible. The regime she has with us has definitely done her good but my inactivity and loss of motivation has increased my weight and created other problems that are directly stress related. There is nothing easy about taking on the care of an elderly parent no matter how fit they may be. AP is remarkably well for her age even if a little doddery but some parts of her personality have gone only to expose the less attractive sides to her nature.
At the moment she has a colleague from her working days staying here with us, they are sitting in the spider infested summerhouse – desperate days. The summerhouse is a lovely space but desperately needs a good clean out, unfortunately my husbands illness this year has put that along with other jobs, on hold. It’s a great place to sit in the evenings especially when enjoying a glass or two of wine.
This wonderful foggy picture illustrates perfectly how hard it is to literally lose ones way.
Another week passes by and this time it has been relatively peaceful. Only a few snipes from the Ageing Person (from now on to be referred to as AP) to break the calm. The worst was the incident of the mislaid sunglasses. We all do this so no drama you would think but no, in this case serious accusations are made that the long suffering husband has deliberately moved them. He actually found them for her where she had left them on the table next to where she sits. Apparently she had looked there and couldn’t see them! That could be a result of poor sight owing to ARMD but AP was absolutely insistent that he had hidden them from her. Although trivial such unreasonable statements cause harm and add to the feeling of being continually besieged and trapped.
We need to challenge our own reactions to these situations which are really of no consequence but they can and do grow out of proportion. We are in danger of disliking this person who lives in our space.
Fortunately we have a busy time ahead and in the midst of this an old colleague of AP’s is coming to stay for a few days which should stem the sniping for a little while at least and also allow us to find a mental space to repair and order our thoughts and feelings.
I must also look at how I can become motivated about losing some weight. It’s so easy to know what to do but an entirely different kettle of fish to do it!