Well, the AP is now officially a resident in the care home. The LSO and myself are hugely relieved for a variety of reasons, not least that we have our freedom back but what I now feel has come as a real surprise. She is well looked after there and seems to be quite settled which is all good.
I thought I might feel an element of guilt because I was so pleased not to have her presence in our home and also to have our space back but instead I realised that the main emotion I was experiencing was anger at having lost more than five years of our lives in such a miserable way. I actively did not want to see the AP and found this a most disturbing feeling. We are still discovering that we can do just about what we want and it struck both the LSO and myself that because we have been so trapped for so long we had actually become institutionalised. But yesterday having discussed how I was feeling with a friend who understood our situation I woke up this morning feeling much more at peace and far less antagonistic towards the AP. That has to be a positive and I am determined that the LSO and myself will make the best of the time we now have.
I have set a deadline for a new eating regime to begin on Monday; we have a friend staying until Sunday and after that I will start to attempt to lose weight in earnest. I have come to the conclusion that because no diet is really sustainable in the long run I will mix and match, starting with the 16:8. I will still do low carb but include on non fast days, a little potato or rice, potatoes because I really miss them and rice only occasionally because it definitely improves the gut function. Not a strict Keto because I will become bored with that and give up. I need to have space to enjoy meals out and to discover my love of cooking again which after the pickiness of the AP took a real battering. A return to swimming is a must as well as walking the dogs now that the stifling temperatures have reduced.
It’s a wonderful feeling to be looking forward to the future and to finally realise that we have reached the light at the end of the tunnel and it isn’t the train hurtling towards us.
There are few words that can describe the last six weeks. We have somehow weathered the AP’s childish attitude and tantrum that put her in hospital for sixteen days. After numerous blood tests, chest and stomach X-rays and finally a CT scan of her head there was found to be nothing wrong with her other than the fact she is a hundred and one years old and suffers from arthritis. Inevitably there has to be some degradation at her great age.
The vomiting, the inability to eat and finally the ‘EXCRUCIATING’ pain in her leg have all vanished. So what was it all about? Incredibly it would appear to be a perceived lack of attention from us and all in general that created this unstoppable hysteria. Needless to say she has done herself damage both mentally and physically but she seems to be happy enough after her first week in the home, getting lots of attention and with people around her. There have also been friends and family visiting most days which has eased the pressure on the LSO and myself. These are all plus points because the AP will be staying there, she is just too frail for us to care for her now and we need our time and space back.
We are now just starting to come down from what has been five and a half years of misery, of being utterly trapped with no personal space and no privacy. But the most interesting outcome of this whole sad business has been the knee jerk reaction from various ‘friends’. The minute the email went out saying that the AP is now in a care home having spent a couple of weeks in hospital, we had several responses from people wanting to rush over and inevitably expecting us to entertain them in our Irish B&B, they stay, we pay. Where were they all when we really needed help? When the LSO was seriously ill two years ago, did anyone offer to come and get the AP, take her with them for a short holiday to give us a rest and the LSO an opportunity to recuperate? No, of course not. They were all happy to use us as a staging post, an overnighter with full board included and apart from my cousin and his wife in Scotland there were no offers of any real help from anyone else. Now she is in a home and we don’t need help they are wanting to rush here having made little effort for years and all because she might be about to depart this mortal coil. What a sad state of affairs, at her age it could happen at any time.
Fortunately those who have made an effort over the years have given a more measured and thoughtful response. Some have commented on the need for us to find tranquility and others have emphasised the importance of making the most of our freedom and enjoying life together. There has also been the understanding that we have done so much above and beyond what was required and they are thankful we were prepared to do it. Actually sacrifice is more a word I would use since the LSO and myself have lost a large slab of years at a time when we couldn’t afford to lose them.
I probably sound to anyone reading this to be bitter and twisted but at the moment I am tired and emotional, still experiencing anxiety attacks and in need of a real rest and a break. Fortunately time is a great healer.
Am I managing to harness those emotions as mentioned in the previous blog? Well maybe not as well as I had hoped but I’m certainly trying hard. The AP was particularly argumentative this morning which stretched my good resolve somewhat. Later when I was about to ferry her to a hair appointment I said I would bring the car up to the door to which she sharply replied that it was already there. No, that was the postman in his little red van I replied. But equally why would I say I would get the car if it was already there? It is a continual battering of stupid little things as if she just wants to prove us wrong all the time. She just doesn’t seem to be able to stop sniping at us. I think truthfully that this is her real personality and that she has always been like that and we had never realised the true situation.
I guess many people are in the same boat as far as knowing their parents. Once we leave home, get married, have children, live our lives independently, our parents become just family we see occasionally. It certainly was in our case because we moved away from our birthplaces, nearly four hundred miles away in fact.
But I am not giving up my resolve. We have an afternoon of freedom from the AP today which, come to think of it is probably why she is being so unpleasant. She does seem to deeply resent the LSO and myself having any time to ourselves which I find very odd and it is apparently irrelevant to her that she enjoys going out with Sarah. It is just another part of the strangeness that is the AP.
Then tomorrow we are taking a trip to Essex to have a lunch out with our son, his wife and their delightful baby son. The AP will be coming with us so it will be interesting to see what happens later after an afternoon of gushing and pretence. Anyway I shall keep hanging in there, breathing deeply whilst following a low carb diet with intermittent fasting.
I am also refusing to be drawn into any kind of confrontation with the AP but I am just hoping the smile doesn’t look like a rictus.
Today is our daughter’s forty-fourth birthday. It is a stark reminder that time is slipping rapidly by and where have those years gone? We both remember the great joy we felt when she arrived and that feeling has remained constant to this very day.
Four is the number of stability and it just happens to be my life number. Pythagoras called the number four the Tetrad and believed it created perfect harmony so our lovely daughter has a double dose of stability and harmony this year.
It set me thinking about what we have to be grateful for in our lives and I would say our two children, their partners and our three grandchildren are pretty well top of the list but there are also other things that have made our lives good together. The LSO and I are lucky to be in this lovely home, we have good friends and although life has not always been a bed of roses we have survived almost fifty years of marriage and fifty-five years of friendship, in fact it will be our Golden Wedding next year.
I found myself breathing in slowly and deeply whilst contemplating all this, letting go of the stress and finding that we have much to be positive about and somehow, instead of moaning about how stressful everything is I need to find a way to harness these current emotions and to stop being a reflection of the depression that can sweep over us both. It would be going too far to suddenly become hugely compassionate because the five years of criticism and manipulation have left an indelible mark but I do not want our situation with the AP to define who I am or in fact who we are. Life is just too short for that.
Now back to the diet and hopefully my determination to succeed will not be ambushed the minute the sun sets over the yard arm.
This last astonishing session with the AP has taken an emotional toll both on the LSO and myself. I have just spent a day with my own thoughts because the LSO has had a rare few hours away fishing with a friend, something he doesn’t do enough of these days.
There was a time pre AP time when we were both hugely busy and happily doing things and it isn’t important what these ‘things’ were, it was just the sheer pleasure of being retired and finally after a lifetime of working being able to use the time available to do what we wanted. In reality we still have that time but the constant battling with the selfishness, changeability and malevolence of the AP has taken away the joy we both had in life itself.
We feel trapped in our lovely home and have to battle with ourselves to do anything at all. I found myself today struggling to just prepare lunch. I used to love cooking and experimenting with lots of flavours, baking and bread making, pickling and jam making were a regular occurrence but now the will is vanishing and instead is being replaced with a sense of futility and frustration. The AP’s constant wittering has ground us down both physically and emotionally. I teeter on the edge of reason most days.
This whole situation is having a devastating effect on my need to lose weight and in fact I have put some pounds back on and am trying desperately to find a way back to my former determination. I cannot afford to go back to being diabetic but that will happen if I cannot reverse this situation. Another rather frightening aspect of this stress, because it certainly is very stressful looking after the AP, is that the LSO and myself use alcohol as an anaesthetic. We don’t drink to excess but do tend to drink each evening to soften the feeling of emotional distress we are permanently in and of course, that is another reason for the steady weight gain.
It is a fact that when you lose the will to live and you merely exist, you lose the will to overcome obstacles. It is simpler to have another glass of wine and relax; simpler but extremely dangerous and we need to pull back from this particular precipice sooner rather than later.
On than very serious note I will take another sip of my rhubarb and apple gin and contemplate starting a new regime tomorrow. It’s bit like giving up any addiction, you just have to keep on giving up not giving in.
Its strange how things happen in life and although I would like to think there is a purpose to everything I realise as I get older that often most happenings are random events. It is best not to read too much into any occurrence or from what people say or what they do.
Many, many times over the last four and a half years I have woken in the night and wondered why we made the decision to have the AP to live with us. What possessed us to take someone who is so domineering, who can be so utterly unpleasant and who has become a stranger to us, into our home and our lives?
The more I dwell on it the less I know so after a great deal of thought I have made the momentous decision not to question our act of sheer stupidity anymore. I am going to look at each day that comes as a step forward and I am not going to look back. As it is, I have now developed strategies to prevent the AP controlling, bully or irritating me which has made a huge difference to my health and well being. Although in the midst of saying all this, part of me will never come to terms that my own mother would try to subjugate me and destroy my marriage. Why would you want to do that to your daughter? It’s unbelievable that every now and then she still tries to gain some control over both of us and in particular, me. In one respect because we are stuck here having to be her carers, she actually does have the ultimate control. We have no freedom, no personal space and no privacy. You would have thought all that would be enough!
Indeed on that rather sad note I realise that the LSO and I need to get some pleasure out of the life we have together, to experience joy in living however small, even given the restrictions of having to look after the AP. We are both remarkably fit for our age and need to give thanks for that because compared to many we are lucky. It’s just finding ways to do it.
I also really do need to find some space to do the right things to move my diet forward too. At the moment I am still on a plateau moving neither up nor down which in itself is a reflection of our lives. I know that things can’t go on forever, that situations are always changing even if sometimes only slightly. We have visitors coming to stay at the weekend which will bring on a load of gushing and pretence from the AP but after that I must do some serious planning.
This part of the year can be a bit depressing being generally cold and often grey and gloomy so it is even more important to be strong, go with the flow and keep moving in the right direction in every aspect of our lives.
Over five years ago we made a decision that was to change our lives completely. We suggested to my then 96 year old mother that she comes to live with us. There were sound reasons behind our decision as she was not looking after herself very well and was looking very weak and wobbly. We also felt that her relationship with us was good and vice versa and we would make this work. We really had no idea what we were doing; what we were taking on or how it would affect us.