Courage – Shrinking Horizons

When life hands you lemons…..

….make lemonade or preferably add them to a G&T.

Well it just has, but no matter how much lemonade or gin I drink it won’t change the situation or make it better.

We had survived the five long and difficult years when the AP was living with us, then we were planning how we would spend our time and Covid-19 came along. No problem we said, lockdown is similar to the years living with the AP except we didn’t have to cope with her intransigence. We came out of it all a little wary but determined to get more out of our latter years and then, wham! A curved ball came out of the blue and left us shell shocked.

The LSO has cancer, not any old cancer but a rather rare one, he has a tumour in his tongue. He’s never smoked, never been a heavy drinker but has enjoyed his real ales and equally fine wines, isn’t overweight and thanks to the two Jack Russells is pretty fit for someone of 76 years of age.

So how did this happen? The consultant says its basically the luck of the draw!

Well, all I can say is thank goodness the LSO is not a gambler.

It has changed our lives completely. The operation was a demanding twelve hours, during which the tumour was removed and the tongue rebuilt using flesh from his thigh then it was ICU for 5 days before a move to a HDU specialising in Head and Neck for a further 2 weeks. During these challenging months the LSO inevitably lost weight but did a good job of recovering, even on a liquid diet, gaining three quarters of a stone from leaving hospital until the Radiotherapy began. Then 3 weeks in, having had 15 sessions, the side effects began to appear. By the end of the 30 sessions he was suffering from severe burning and pain in his mouth, tongue and throat making eating and swallowing incredibly difficult, leading to further weight loss. Morphine has had little effect on the pain so Fentanyl patches were added for further relief. These too had little effect so it was suggested by the radiologist that these be doubled every three days. That was last night and things do seem ever so slightly better.

Apparently the side effects keep ramping up after the treatment ends though for how long no one knows because everyone reacts differently to this brutal treatment.

Where do we go from here? Well we can only go forwards and handle the situation with grace, positivity and remember that humour is a great healer. Although at the moment the LSO is struggling and I feel weary, utterly exhausted and just a little battered and just hope we can both find the laughter we have enjoyed as a couple for 58 years returning to buoy us up.

….and the AP? still sailing on at 104 years of age.

Another life.

After a spell of really warm weather, then some torrential rain, we are back to the great greyness and it is cold. Cold enough to tweak the central heating on which comes as a bit of a shock three-quarters of the way through June.

It doesn’t help with dieting either; I was enjoying the barbecued meals with lots of salads and vegetable kebabs which are spot on for a low carb diet. Now I find my mind lingerering, be it briefly, on more wintry casseroles and soups but no, I will not succumb to these thoughts and tonight it is a warm salad which I suppose is a bit of a compromise. I have now lost 30lbs, another 6 lbs off will put me about halfway to my target which I am hoping to reach before my 76th birthday.

My cousin and his wife came down from Scotland for a few days last week and although I was a bit concerned about how I would manage, especially as with so many of our friends and relatives we have developed a culture of ‘wining and dining’ but it was fine and I even lost some weight. The G&T’s were definitely off the menu replaced with fizzy water with a slice of lime and lemon.

But the recent visits of relatives and our children with their families has all been a challenge, be it a lovely one, to not slip into old habits and so far, so good.

I really do feel that I am finally throwing away the shackles that have seriously blighted not only my life but the life of the LSO. It is two years since the AP went into the care home and it has taken all that time to get my ducks in a row. I still speak to her every week and sort her affairs out but in truth lockdown has done us a favour because at the moment we don’t have to see her, well only infrequently, which is giving me the time I need to mentally and physically heal.

Mindfulness.

Well, here I am almost four weeks since my last post and the 16lb loss is now 24lbs off but I have reached a bit of a plateau which I refuse to be down about. I do need to move a bit more but I am back to swimming twice a week and I have resorted to doing some stretching exercises only intermittently and have bought some resistance bands. I just need to read the book and then remove them from the wallet they are in, they are way more effective that way!

Lockdown has done me no favours and I am sure many can equate to this feeling. I have definitely become a bit of a couch potato and the very word ‘exercise’ can reduce me to a jabbering wreck, full of endless excuses as to why I should avoid it.

Also whilst battling the little devil that sits on my shoulder I am trying not to look too far ahead because then I might just cave in due to the enormity of the task facing me. I need to lose a further 42 lbs to be in a true health zone and to become non-diabetic as well as fitter and just as importantly very much happier in my skin.

So I am taking small steps and enjoying my new mindful eating and the fact that I can now bend over and pick things off the floor, bonus.

It’s the word ‘mindful’ that intrigues me. Has anyone else noticed how often it creeps into so much literature. It’s obviously a new buzzword, an all encompassing word to take the place of others, such as meditation, stress busting, good old fashioned awareness among but a few. There is even a mindful chef!

But being serious it’s interesting how I have found that mindfulness when applied to eating can actually make a difference. Also I have never, until recently been quite so aware of how the past seven years have impacted on everything to do with our lives. How overwhelmed we have been by it all and how the circumstances that brought about a great deal of unhappiness, distress and in my case, illness could have been avoided if the LSO and myself had been more mindful and more fully present in our own lives. The AP would not have come to live with us and we would both have had fond memories of her. Sometimes it is not right to do what seems to be the right thing, the attempt to offer her warmth and kindness fell on stony ground. At some point we should have put our own needs first.

Now I am struggling to even ring her nevermind go and see her which is so sad; so it’s definitely a time to meditate before making the call. Will it work?

Hopefully.

A dawning of reality.

Well so much for a hint of Spring. Since I wrote my last blog, which the LSO said was a like an interval, the temperatures have plummeted and snow and ice have appeared. The former more of a dusting but with temperatures hardly rising above one degree during the day, it has been really, really cold. Today there is a sudden rise in temperature although it is grey and drizzling but it’s certainly a change to have warm feet.

Some time ago I wrote about ‘watch this space’, well the ‘space’ has arrived with a vengeance, completely back-footing me. About a week or so ago I finally removed my head from the bucket of sand which I had firmly stuck it in for months. I had actually been enjoying cooking all the comfort foods that the LSO and I have enjoyed through the months despite my slow but steady weight gain. There were several signs that all was not well but I chose to find other things to blame, then I woke up one day about a week ago and realised I needed to be honest with myself. I knew in my heart that the latest drugs I had been given for Type 2 Diabetes were not working so I blew the dust off my BG Monitor and started testing. Oh dear me, glucose levels were definitely too high. They would have been reasonably ok if I wasn’t already on medication, medication that four months ago had been doubled in strength.

To cut a long story short I arranged to have blood and urine tests and I am now on a different drug, this new one involves a completely changed eating regime which has thrown me into confusion. I cannot retreat to the keto diet which did work for me a few years ago because on this drug I risk getting Ketoacidosis which is not to be recommended. I need some carbs to keep my glucose levels stable, but how many can I have or should I say, how few do I need. Can I have as many as 45 + Carbs per meal or will my body be fine on less. I also have to drink loads of water, two to three litres a day which doesn’t come naturally to me. This results in me spending half the day rushing to the loo but at least, with lockdown I have nowhere to go.

Sadly there is no-one who can give me a definitive answer to my problems, we are all different and our bodies all have different reactions. It really is a case of trial and error whilst I find a balance that works for me.

So it is back to the drawing board, while I read again about Type 2 Diabetes, portion control, checking recipes that can be used for the LSO as well and are suitable for me, with some tweaking. At the moment I am looking at Low GI versus Glycaemic Loads and which foods work to keep the BG stable as well as enabling me to lose a substantial amount of weight at the same time. In the meanwhile I am testing four times a day, when I remember, peeing for England and feeling like the white rabbit in Alice in Wonderland.

Thankfully I can still enjoy a glass of wine.

Moving forward.

It has been a strange couple of weeks, I am still sorting out the AP’s deferred payment scheme with NCC; I have had one injection in my left eye which was a bit traumatic and I keep wondering if what we are living with now is going to be a permanent situation for us.

The LSO and I are at an age when we have far less in front of us in terms of living but we never dreamt, fifteen years ago, that we would be so very limited in how we would be spending that time. I guess we are luckier than most because we are, touch wood, pretty healthy although there are improvements to be made and we both have creative hobbies to occupy us as well as a fine space around us.

I am really enjoying having my studio space back. I had forgotten how peaceful the space is and how good it is to think creatively. It really does help to clear the mind and put other situations into perspective.

There is much to said for having a desire to create and it doesn’t matter what it is, whether it involves creative cooking, knitting, embroidery, sewing, drawing, painting, print making, collage, pottery, photography, gardening, programming, writing or construction using 3 D materials. The list is endless, in fact anything that adds another dimension to your life and thoughts, can add depth in so many ways and produce a sense of achievement and pleasure.

Everyone is capable of being creative and it isn’t anything to do with the ability to draw. Artists just take their special talents in a different direction as does anyone with a specific ability, creativity is the use of imagination and inventiveness and everyone has that ability tucked away inside themselves. It just needs a bit of encouragement to help it to emerge.

Never worry what others think either, this is something that you do for yourself. Its a lesson in life that takes courage to pursue but worth every minute of the effort.