Today, I suddenly became overwhelmed by a sense of utter frustration as the LSO and I watched the news which as is the norm now, being dominated by the Coronavirus but not with anything particularly definite. Just a string of ‘what could happen’ without any idea of timings. The talk is that the over 70’s which inevitably includes us, will have to self isolate to avoid catching this bloody virus but when! Having been more or less in that position for over five years and having finally got over our sense of being institutionalised we are now facing crawling back into our shells for possibly up to four months.
I guess, in truth that’s a drop in the ocean for us and yes, we can do it. We have hobbies, the dogs and a lovely environment but it is just so very, very irritating and already I am bored at the prospect. Self motivation goes out of the window and that must not become a habit. We had plans to see the family over the Easter break and now that won’t be happening. We have just got back our freedom of movement and have been thoroughly enjoying exploring places again, eating out when we feel like it and doing things at a whim only to have it all curtailed again. At least with modern technology as well as FaceTime isolation isn’t total but I just hope the government are astute enough to organise things in a sensible way. Perhaps astute, sensible and politicians in one sentence are an oxymoron, time will tell. But truth be told we are not ready to depart this mortal coil as yet and we will follow sensible guidelines in order to hopefully avoid catching this virus.
It is mind boggling that there are some selfish members of our society who are stockpiling among other things, toilet rolls. Common sense should tell them that these things, if bought sensibly will continue to be available for all but no, the stupidity continues at an embarrassing rate. It’s nothing new though, we have seen all this before from petrol shortages because people were filling up cars to sit on their drives to panic buying of milk and bread. It really is all so unnecessary, people should stay calm and think more about others and less of themselves.
Well, on that note I think it’s time to get my knitting out, who knows, I may finally finish the sweater I started over a year ago.
This title sounds like a story from Sherlock Holmes but sadly the problem will not be solved as easily. My body is not responding to the low carb diet, I am not gaining weight but neither am I losing any. My glucose levels aren’t brilliant either so maybe the new drug isn’t working as well as it should or maybe it just needs to be a higher dosage.. it’s early days and my next set of tests are two months away. The LSO sent me the picture above which he called “Skinny Pole’ which is definitely not me. Funny B…. but you have to laugh.
Maybe I need to look at portion control and use a smaller plate for my meals, it’s certainly worth a try. I also am aware that this long, cold and wet winter is not helping. I hate mud so I am not walking the dogs with the LSO which is something I need to address but this little voice in my head says ‘when the weather improves’ but I have been listening to that voice for several months now.
The imposed institutionalisation as a result of being the AP’s carers is difficult to shake off and I am aware that I have become disinterested in a great deal that made my life tick before she came to live with us. Five and a half years of being trapped have taken a heavy toll. Her nastiness, vindictiveness and her cunning controlling ways have left a permanent scar that isn’t going away easily. The fact that we have to visit the AP in the care home has become a necessary chore and something the LSO and myself both dread. We never quite know what we will find when we get there, today she was in bed, in a deep sleep so we left her requested boxes of tissues and came home. There is no point in waking her as we have found to our cost in the past because all we are met with is confusion.
She will be one hundred and two years old on April 30th. Will she make it, who knows? She is just a bag of skin and bone, drifting in and out of a kind of dream world. It’s sad really because although she is well looked after she is just existing, waiting for the inevitable to happen. Being cynical, I guess it’s in the care home’s interest to look after her well as it guarantees another week of fees which are going up in April a mighty 5.9% from £1070 to £1133 a week.
Indeed it was inevitable. My visit to the Diabetic Nurse this week revealed what I had already guessed; I am back to having Type 2 Diabetes although not as high a blood glucose count as last time.
A mixed blessing in some ways as it makes it even more important that I lose the excess weight again and the fear of the consequences that can occur because of it certainly focusses the mind.
Last time the LCHF diet worked well for me in the beginning but as I have said before, no diets are sustainable in the long term. No matter how often you say to yourself that you don’t miss the things you can’t have the inevitable happens and you do. So this time I will do some mixing and matching; a couple of months on this one then have a rest and continue dieting using the 800 5:2 diet. It’s not hugely different but allows a bit more flexibility.
I am trying not to be stressed as the years of being in a continual state of fight or flight mode because of the AP have taken a massive toll on my health never mind happiness. But I do feel much calmer as long as I don’t dwell too much on the past and the lost years. Visiting her still tends to be stressful but at least she is not living with us anymore.
An added bonus is that my love of cooking has returned and I am experimenting with a variety of vegetable, meat and fish dishes. The LSO is definitely still the long suffering one because to a greater extent he is having to eat the same meals as me but so far he seems to be enjoying them. So that’s a bonus.
I just need to get moving again once Storm Ciara passes and what a storm it is. I am writing this with the rain lashing the windows and the wind singing in the guttering and whistling in the chimney.
Well, the AP is now officially a resident in the care home. The LSO and myself are hugely relieved for a variety of reasons, not least that we have our freedom back but what I now feel has come as a real surprise. She is well looked after there and seems to be quite settled which is all good.
I thought I might feel an element of guilt because I was so pleased not to have her presence in our home and also to have our space back but instead I realised that the main emotion I was experiencing was anger at having lost more than five years of our lives in such a miserable way. I actively did not want to see the AP and found this a most disturbing feeling. We are still discovering that we can do just about what we want and it struck both the LSO and myself that because we have been so trapped for so long we had actually become institutionalised. But yesterday having discussed how I was feeling with a friend who understood our situation I woke up this morning feeling much more at peace and far less antagonistic towards the AP. That has to be a positive and I am determined that the LSO and myself will make the best of the time we now have.
I have set a deadline for a new eating regime to begin on Monday; we have a friend staying until Sunday and after that I will start to attempt to lose weight in earnest. I have come to the conclusion that because no diet is really sustainable in the long run I will mix and match, starting with the 16:8. I will still do low carb but include on non fast days, a little potato or rice, potatoes because I really miss them and rice only occasionally because it definitely improves the gut function. Not a strict Keto because I will become bored with that and give up. I need to have space to enjoy meals out and to discover my love of cooking again which after the pickiness of the AP took a real battering. A return to swimming is a must as well as walking the dogs now that the stifling temperatures have reduced.
It’s a wonderful feeling to be looking forward to the future and to finally realise that we have reached the light at the end of the tunnel and it isn’t the train hurtling towards us.
There are few words that can describe the last six weeks. We have somehow weathered the AP’s childish attitude and tantrum that put her in hospital for sixteen days. After numerous blood tests, chest and stomach X-rays and finally a CT scan of her head there was found to be nothing wrong with her other than the fact she is a hundred and one years old and suffers from arthritis. Inevitably there has to be some degradation at her great age.
The vomiting, the inability to eat and finally the ‘EXCRUCIATING’ pain in her leg have all vanished. So what was it all about? Incredibly it would appear to be a perceived lack of attention from us and all in general that created this unstoppable hysteria. Needless to say she has done herself damage both mentally and physically but she seems to be happy enough after her first week in the home, getting lots of attention and with people around her. There have also been friends and family visiting most days which has eased the pressure on the LSO and myself. These are all plus points because the AP will be staying there, she is just too frail for us to care for her now and we need our time and space back.
We are now just starting to come down from what has been five and a half years of misery, of being utterly trapped with no personal space and no privacy. But the most interesting outcome of this whole sad business has been the knee jerk reaction from various ‘friends’. The minute the email went out saying that the AP is now in a care home having spent a couple of weeks in hospital, we had several responses from people wanting to rush over and inevitably expecting us to entertain them in our Irish B&B, they stay, we pay. Where were they all when we really needed help? When the LSO was seriously ill two years ago, did anyone offer to come and get the AP, take her with them for a short holiday to give us a rest and the LSO an opportunity to recuperate? No, of course not. They were all happy to use us as a staging post, an overnighter with full board included and apart from my cousin and his wife in Scotland there were no offers of any real help from anyone else. Now she is in a home and we don’t need help they are wanting to rush here having made little effort for years and all because she might be about to depart this mortal coil. What a sad state of affairs, at her age it could happen at any time.
Fortunately those who have made an effort over the years have given a more measured and thoughtful response. Some have commented on the need for us to find tranquility and others have emphasised the importance of making the most of our freedom and enjoying life together. There has also been the understanding that we have done so much above and beyond what was required and they are thankful we were prepared to do it. Actually sacrifice is more a word I would use since the LSO and myself have lost a large slab of years at a time when we couldn’t afford to lose them.
I probably sound to anyone reading this to be bitter and twisted but at the moment I am tired and emotional, still experiencing anxiety attacks and in need of a real rest and a break. Fortunately time is a great healer.