sacrifice – Shrinking Horizons

When life hands you lemons…..

….make lemonade or preferably add them to a G&T.

Well it just has, but no matter how much lemonade or gin I drink it won’t change the situation or make it better.

We had survived the five long and difficult years when the AP was living with us, then we were planning how we would spend our time and Covid-19 came along. No problem we said, lockdown is similar to the years living with the AP except we didn’t have to cope with her intransigence. We came out of it all a little wary but determined to get more out of our latter years and then, wham! A curved ball came out of the blue and left us shell shocked.

The LSO has cancer, not any old cancer but a rather rare one, he has a tumour in his tongue. He’s never smoked, never been a heavy drinker but has enjoyed his real ales and equally fine wines, isn’t overweight and thanks to the two Jack Russells is pretty fit for someone of 76 years of age.

So how did this happen? The consultant says its basically the luck of the draw!

Well, all I can say is thank goodness the LSO is not a gambler.

It has changed our lives completely. The operation was a demanding twelve hours, during which the tumour was removed and the tongue rebuilt using flesh from his thigh then it was ICU for 5 days before a move to a HDU specialising in Head and Neck for a further 2 weeks. During these challenging months the LSO inevitably lost weight but did a good job of recovering, even on a liquid diet, gaining three quarters of a stone from leaving hospital until the Radiotherapy began. Then 3 weeks in, having had 15 sessions, the side effects began to appear. By the end of the 30 sessions he was suffering from severe burning and pain in his mouth, tongue and throat making eating and swallowing incredibly difficult, leading to further weight loss. Morphine has had little effect on the pain so Fentanyl patches were added for further relief. These too had little effect so it was suggested by the radiologist that these be doubled every three days. That was last night and things do seem ever so slightly better.

Apparently the side effects keep ramping up after the treatment ends though for how long no one knows because everyone reacts differently to this brutal treatment.

Where do we go from here? Well we can only go forwards and handle the situation with grace, positivity and remember that humour is a great healer. Although at the moment the LSO is struggling and I feel weary, utterly exhausted and just a little battered and just hope we can both find the laughter we have enjoyed as a couple for 58 years returning to buoy us up.

….and the AP? still sailing on at 104 years of age.

Another life.

After a spell of really warm weather, then some torrential rain, we are back to the great greyness and it is cold. Cold enough to tweak the central heating on which comes as a bit of a shock three-quarters of the way through June.

It doesn’t help with dieting either; I was enjoying the barbecued meals with lots of salads and vegetable kebabs which are spot on for a low carb diet. Now I find my mind lingerering, be it briefly, on more wintry casseroles and soups but no, I will not succumb to these thoughts and tonight it is a warm salad which I suppose is a bit of a compromise. I have now lost 30lbs, another 6 lbs off will put me about halfway to my target which I am hoping to reach before my 76th birthday.

My cousin and his wife came down from Scotland for a few days last week and although I was a bit concerned about how I would manage, especially as with so many of our friends and relatives we have developed a culture of ‘wining and dining’ but it was fine and I even lost some weight. The G&T’s were definitely off the menu replaced with fizzy water with a slice of lime and lemon.

But the recent visits of relatives and our children with their families has all been a challenge, be it a lovely one, to not slip into old habits and so far, so good.

I really do feel that I am finally throwing away the shackles that have seriously blighted not only my life but the life of the LSO. It is two years since the AP went into the care home and it has taken all that time to get my ducks in a row. I still speak to her every week and sort her affairs out but in truth lockdown has done us a favour because at the moment we don’t have to see her, well only infrequently, which is giving me the time I need to mentally and physically heal.

Mindfulness.

Well, here I am almost four weeks since my last post and the 16lb loss is now 24lbs off but I have reached a bit of a plateau which I refuse to be down about. I do need to move a bit more but I am back to swimming twice a week and I have resorted to doing some stretching exercises only intermittently and have bought some resistance bands. I just need to read the book and then remove them from the wallet they are in, they are way more effective that way!

Lockdown has done me no favours and I am sure many can equate to this feeling. I have definitely become a bit of a couch potato and the very word ‘exercise’ can reduce me to a jabbering wreck, full of endless excuses as to why I should avoid it.

Also whilst battling the little devil that sits on my shoulder I am trying not to look too far ahead because then I might just cave in due to the enormity of the task facing me. I need to lose a further 42 lbs to be in a true health zone and to become non-diabetic as well as fitter and just as importantly very much happier in my skin.

So I am taking small steps and enjoying my new mindful eating and the fact that I can now bend over and pick things off the floor, bonus.

It’s the word ‘mindful’ that intrigues me. Has anyone else noticed how often it creeps into so much literature. It’s obviously a new buzzword, an all encompassing word to take the place of others, such as meditation, stress busting, good old fashioned awareness among but a few. There is even a mindful chef!

But being serious it’s interesting how I have found that mindfulness when applied to eating can actually make a difference. Also I have never, until recently been quite so aware of how the past seven years have impacted on everything to do with our lives. How overwhelmed we have been by it all and how the circumstances that brought about a great deal of unhappiness, distress and in my case, illness could have been avoided if the LSO and myself had been more mindful and more fully present in our own lives. The AP would not have come to live with us and we would both have had fond memories of her. Sometimes it is not right to do what seems to be the right thing, the attempt to offer her warmth and kindness fell on stony ground. At some point we should have put our own needs first.

Now I am struggling to even ring her nevermind go and see her which is so sad; so it’s definitely a time to meditate before making the call. Will it work?

Hopefully.

No horizons.

We have woken up for several days lately surrounded by dense fog and on one particular day it never disappeared at all; it just kept becoming slightly more transparent then rolled back again. Apart from the occasional and refreshing sunny day, it has been cold, damp and grey. A bit like our lives in lockdown really only now we fight the brain fog that threatens to engulf us too. Conversations are punctuated with ‘thingymebobs and thingamajigs’ as we struggle to remember basic words.

When the AP came to live with us neither the LSO or myself expected the sudden change in her personality that caused us so much grief for so long. It was a relief when she finally went into a care home although that situation has its own set of problems and we did, for a short spell have our freedom back but the coronavirus and yet another lockdown have left us marooned in our home again.

I had, during our brief break for freedom, thought about changing the title of this blog. During those five and a half years not only did our horizons shrink but so did our energy levels. The whole situation seemed to suck the very life out of us both and in truth that is happening again now for differernt reasons and it must be the same for many people. So, I guess there is little point in changing the title. These are indeed worrying times and all we can do is take care, be kind to ourselves and others and have hope that the vaccine is eventually effective and we can all get back to some kind of normality.

I haven’t abandoned the weight loss programme; I am eating smaller meals, reducing the alcohol intake and I have stopped baking for a while although we are demolishing the Christmas cake. These little tweeks to our lifestyle seem to be having a positive affect for the time being.

I am now considering heading into the kitchen, in a most positive way of course, to bottle the Crab Apple gin I made two years ago.

Another day……..

…….. and another with each day slipping seamlessly into the next with little to distinguish one from the other. I fight some mornings to even remember what day it is because apart from having to eat, there is no structure to our time. The LSO and I have slipped into a routine that revolves around mealtimes with the inevitable question after breakfast of ‘what will we eat tonight’? I am sure this is echoed in many homes around the country.

We are both feeling rather demotivated which, I guess is inevitable. At least we don’t have the AP living with us anymore so the stress factors are minimal and I really do think it is just a case of getting on and ‘doing’. I still have the weekly telephone call to the AP which can vary from being quite pleasantly normal to demanding and difficult. I cannot believe that we put up with over five years of utter misery; life with the AP was dreadful starting from day one. We spoke to a friend from Surrey whom we hadn’t heard from for a long time, who had decided to bring his mother to live with him and his wife. They lasted twelve weeks until they were forced to put her in a home and could not believe that we had put up with the AP for so long.

I know that we shouldn’t dwell too much on the past but it’s impossible to completely forget the daily stresses and strains we endured on a daily basis and how desperate we became. I was the punch bag, focal point of all my mother’s nastiness which was unbelievably hurtful and damaging and when she couldn’t get the reaction she wanted from me she turned on the LSO. Lockdown has, in a strange way, brought a great deal of it back. We were trapped in our own home then but with an old woman who was rude, inconsiderate, unkind, controlling and utterly divisive and that’s being quite mild about the situation. She certainly bore little resemblance to the person I thought of as my mother.

They say time is a great healer and perhaps it is, but the LSO and I have more years behind us than ahead of us. I just hope that this virus runs its course and we can have some semblance of a normal life back. I do find it hard to be motivated at the moment. Before the arrival of the AP it was never a problem; life was delightfully busy and interesting.

Now I just fight feelings of negativity telling myself to just get on with it, make the best of the situation and look on the bright side, at least the AP is in a care home and no longer living with us.

What went wrong?

I am experiencing a dreadful feeling of sadness and it has come over me quite suddenly. I think it is probably a by-product of the current situation that we find ourselves in although it is definitely not helped by the rantings of the press, the railing against the government by all and sundry, the shocking pictures of violence both here and around the world and the huge selfish attitudes of so many about so many different things, not just the effects and worries that are towed along by Covid-19.

I am, like many, quite shocked by the current news photographs around the world of packed beaches, all night raves, violence and large parties where social distancing is a thing of the past, that is if it ever existed for these people. I read articles where politicians are to blame for everything and that appears to exonerate the actions of the many who appear to have no regard for others or even for themselves and I feel sad, a deep, deep sadness because I wonder what has happened to the world.

The LSO and myself were born just after WW2 into the great greyness which was lightened occasionally by a smattering of bottle green and brown in all its various shades. Men had two suits, one for work and it was often the demob one and one for best which serviced everything from christenings to funerals. The Cooperative Society Dividend went towards winter coats and school shoes and food was still rationed so meals were basic and each day of the week was the same each week. Our diet was healthy enough because we grew a lot of our own vegetables and fruit with the luckier ones being able to afford a greenhouse, those who didn’t have a garden could have an allotment for a few pence a week.

But it truly was a grey world, being in the North East it was wet a great deal of the time and definitely colder than the South but as children we were unaware that things could be different. Men back from the war years were glad to be alive although the physically disabled were in evidence on street corners trying to make a meagre living selling matches and other sundry items. Council houses were nothing to be ashamed of and only the really well off like doctors and lawyers could afford to own their own property. Gardens were maintained to a high standard and people took a pride in what they had, gathering at the Community Hut for regular events such as vegetable and flower competitions, cake shows and women took a huge pride in their jam making. There was even a section for children to display embroidery, simple sewing and my favourite was always the miniature garden on a tray with a mirror for the pond.

We didn’t have much and Christmas presents always featured mostly around things that were needed such as slippers and a dressing gown. An Annual was usually included along with a Cadbury’s selection box and I can remember being envious of my brother getting the Eagle Annual, I loved reading about Dan Dare and the Mekon. The stocking hanging usually over the fireguard, was always a sock of my dad’s with a few nuts and an orange but I didn’t feel deprived or wanted what others had because life was just what it was.

After leaving school I went to Art School and met the LSO, a mere fifty-six years ago and life was fun, the swinging sixties were just that for us and in 1970 we got married. We weren’t idealists but we wanted a better life for our children which in truth they got. I am sure much of what I have written will apply to the majority of people in our age group. I resent the comments made about the grey pound population being a drag on the market, we worked hard all our lives for what we have now and paid all our taxes but the difference between us and our own parents is that we had the opportunity.

So what went wrong? I can only put it down to greed in all its forms and sadly that is a hugely distructive element of human nature. It would appear that the majority of people in powerful positions in this world are the greediest, the more gently intelligent members of the human race are being squashed and shouted down.

The other day during a conversation with our daughter (K) who has just had her 45th birthday I asked if she had had a good day and some lovely presents. She said one of the best presents had come from a neighbour who had scoured the internet to find something that she would really like, it wasn’t expensive, just the right thing and K said that those are the most cherished and appreciated presents because someone had really thought about her as a person.

So true and I did feel that we hadn’t got it all wrong as parents but we just need a zillion more people with that attitude to make the world a better place.

The reality.

I woke up this morning feeling a bit down, no reason for it, just felt under par. Slept well so that’s not the problem so why do I feel like this? I guess it’s a combination of things which I am sure will be affecting everyone at the moment while existing in this surreal and wholly unnatural situation.

It isn’t so much that the LSO and I want to necessarily travel, go on holiday, see friends, go back to swimming, go fishing, enjoy time with the family, enjoy meals out, invite people to our home, sit in the garden on a warm Spring day enjoying a chat and a drink with friends and neighbours, decide to pop out to do a bit of shopping or drive up to the coast and walk the dogs along the beach. No, it’s not any of that, it would just be good to know we could do all those things if we wanted to.

I don’t think the woolly instructions from the powers that be help either. It was extremely clear at the beginning of this lockdown what we could and couldn’t do and although difficult, most people understood why and complied with the rules, now it is just a mess. People can travel any distance anywhere in England for a day trip only. That’s great advice so spread that virus around England’s beauty spots because there are no pubs or restaurants open and social distancing is supposed to still to be practiced. Sensibly most of these areas don’t want visitors because it’s not as if everything is back to normal or even as is constantly being said, a new normal. I am hugely glad that I don’t have to travel work in a big city but for those who have no choice it must be very worrying.

All this when we are also being told that holidays are on hold and the uncertainty surrounding the opening of schools must be driving parents of young children mad. Would I have wanted my children back at school at the moment? I just don’t know and it is this uncertainty about everything that sits so uncomfortably at the back of my mind except for this morning when it was very much in the forefront of my thoughts.

It’s truly biblical.

Today I found myself standing in the hallway looking intently at nothing in particular and humming that banal little ditty ‘I want to go a-wandering among the hills so green’. Now that is worrying and obviously deeply psychological. What shall I do? First things first, decide what to have for lunch since the decision has already been made for dinner tonight. At the moment I don’t feel like cooking so it’ll be pasta with tomato and chilli sauce. Well that’s another decision made but lunch isn’t for another two hours or so, how shall I fill the space before then?

How many of us around the world are feeling the same? Thousands possibly even millions of people I would imagine trapped in this strange limbo land.

For the LSO and myself this will be a long haul because of our age whilst those younger and less at risk will eventually be able to go out as long as they keep socially distancing. It’s going to be a slow process and I wonder how much will actually change hopefully for the better. I am not so much bored as feeling trapped. Having been trapped for over five years whilst looking after the AP we really had found our freedom only to have it taken away again.

The LSO would like to be sitting on a riverbank watching a small red float drifting past lily pads but I just would like to feel that I can go out at a whim. Perhaps shopping or to lunch or meet up with a group of friends, see the family. Now that really is a miss. The grandchildren are all growing up, our own children are growing older as we are and we can’t visit them or them us. Then just to rub salt into the wound when eventually we can meet up we can’t even cuddle or hug any of them. Cruel world indeed.

I had an email from a friend in Australia who has survived the drought, the terrifying fires, then the floods and now this. It is all truly biblical and I keep looking out to see if we have a plague of locusts approaching. That reminded me of an occasion when the LSO and myself were visiting friends in North Norfolk in 2011 and we heard something like hailstones hitting the car. They were in fact Ladybirds and there were thousands of them. People were rushing around trying to brush them out of their hair and there were piles of these insects lying in the gutters. When we reached our friend’s house we scurried indoors to find the lights on because the windows were black with these invaders, apparently the swarms had been blown across the Channel from Europe.

I have since discovered that these foreign insects are responsible for the demise of our own native species.

All food for thought.

Bored already.

Today, I suddenly became overwhelmed by a sense of utter frustration as the LSO and I watched the news which as is the norm now, being dominated by the Coronavirus but not with anything particularly definite. Just a string of ‘what could happen’ without any idea of timings. The talk is that the over 70’s which inevitably includes us, will have to self isolate to avoid catching this bloody virus but when! Having been more or less in that position for over five years and having finally got over our sense of being institutionalised we are now facing crawling back into our shells for possibly up to four months.

I guess, in truth that’s a drop in the ocean for us and yes, we can do it. We have hobbies, the dogs and a lovely environment but it is just so very, very irritating and already I am bored at the prospect. Self motivation goes out of the window and that must not become a habit. We had plans to see the family over the Easter break and now that won’t be happening. We have just got back our freedom of movement and have been thoroughly enjoying exploring places again, eating out when we feel like it and doing things at a whim only to have it all curtailed again. At least with modern technology as well as FaceTime isolation isn’t total but I just hope the government are astute enough to organise things in a sensible way. Perhaps astute, sensible and politicians in one sentence are an oxymoron, time will tell. But truth be told we are not ready to depart this mortal coil as yet and we will follow sensible guidelines in order to hopefully avoid catching this virus.

It is mind boggling that there are some selfish members of our society who are stockpiling among other things, toilet rolls. Common sense should tell them that these things, if bought sensibly will continue to be available for all but no, the stupidity continues at an embarrassing rate. It’s nothing new though, we have seen all this before from petrol shortages because people were filling up cars to sit on their drives to panic buying of milk and bread. It really is all so unnecessary, people should stay calm and think more about others and less of themselves.

Well, on that note I think it’s time to get my knitting out, who knows, I may finally finish the sweater I started over a year ago.

The case of the hopeless dieter.

This title sounds like a story from Sherlock Holmes but sadly the problem will not be solved as easily. My body is not responding to the low carb diet, I am not gaining weight but neither am I losing any. My glucose levels aren’t brilliant either so maybe the new drug isn’t working as well as it should or maybe it just needs to be a higher dosage.. it’s early days and my next set of tests are two months away. The LSO sent me the picture above which he called “Skinny Pole’ which is definitely not me. Funny B…. but you have to laugh.

Maybe I need to look at portion control and use a smaller plate for my meals, it’s certainly worth a try. I also am aware that this long, cold and wet winter is not helping. I hate mud so I am not walking the dogs with the LSO which is something I need to address but this little voice in my head says ‘when the weather improves’ but I have been listening to that voice for several months now.

The imposed institutionalisation as a result of being the AP’s carers is difficult to shake off and I am aware that I have become disinterested in a great deal that made my life tick before she came to live with us. Five and a half years of being trapped have taken a heavy toll. Her nastiness, vindictiveness and her cunning controlling ways have left a permanent scar that isn’t going away easily. The fact that we have to visit the AP in the care home has become a necessary chore and something the LSO and myself both dread. We never quite know what we will find when we get there, today she was in bed, in a deep sleep so we left her requested boxes of tissues and came home. There is no point in waking her as we have found to our cost in the past because all we are met with is confusion.

She will be one hundred and two years old on April 30th. Will she make it, who knows? She is just a bag of skin and bone, drifting in and out of a kind of dream world. It’s sad really because although she is well looked after she is just existing, waiting for the inevitable to happen. Being cynical, I guess it’s in the care home’s interest to look after her well as it guarantees another week of fees which are going up in April a mighty 5.9% from £1070 to £1133 a week.

I wish our pensions did the same!