Today I found myself standing in the hallway looking intently at nothing in particular and humming that banal little ditty ‘I want to go a-wandering among the hills so green’. Now that is worrying and obviously deeply psychological. What shall I do? First things first, decide what to have for lunch since the decision has already been made for dinner tonight. At the moment I don’t feel like cooking so it’ll be pasta with tomato and chilli sauce. Well that’s another decision made but lunch isn’t for another two hours or so, how shall I fill the space before then?
How many of us around the world are feeling the same? Thousands possibly even millions of people I would imagine trapped in this strange limbo land.
For the LSO and myself this will be a long haul because of our age whilst those younger and less at risk will eventually be able to go out as long as they keep socially distancing. It’s going to be a slow process and I wonder how much will actually change hopefully for the better. I am not so much bored as feeling trapped. Having been trapped for over five years whilst looking after the AP we really had found our freedom only to have it taken away again.
The LSO would like to be sitting on a riverbank watching a small red float drifting past lily pads but I just would like to feel that I can go out at a whim. Perhaps shopping or to lunch or meet up with a group of friends, see the family. Now that really is a miss. The grandchildren are all growing up, our own children are growing older as we are and we can’t visit them or them us. Then just to rub salt into the wound when eventually we can meet up we can’t even cuddle or hug any of them. Cruel world indeed.
I had an email from a friend in Australia who has survived the drought, the terrifying fires, then the floods and now this. It is all truly biblical and I keep looking out to see if we have a plague of locusts approaching. That reminded me of an occasion when the LSO and myself were visiting friends in North Norfolk in 2011 and we heard something like hailstones hitting the car. They were in fact Ladybirds and there were thousands of them. People were rushing around trying to brush them out of their hair and there were piles of these insects lying in the gutters. When we reached our friend’s house we scurried indoors to find the lights on because the windows were black with these invaders, apparently the swarms had been blown across the Channel from Europe.
I have since discovered that these foreign insects are responsible for the demise of our own native species.
I haven’t written a blog for about seven weeks which can only be a good sign as far as my emotional and mental health is concerned. For almost four years this blog has stood firmly between me and insanity of that I have no doubt; I have been able to keep things in perspective by writing down my feelings and my responses to intolerable situations. The inevitable run up to the Christmas festivities is partly responsible for the radio silence and now that the AP is in a care home the stress factors have vanished almost completely. I say almost because we still have to visit her once a week. This does nothing for our peace of mind because her behaviour with us is often aggressive, demanding and thoroughly unpleasant. We go out of a sense of duty but often come away feeling very down having listened to a string of moans about nothing in particular. We try to steer the conversation to lighthearted things but the AP can and does think only of herself. She is rude about the other residents, calling them thick and is convinced someone has stolen a pink bag she had in there. She probably took it to the dining room with her and forgot about it. The staff party all night too, shades of the hospital! I bet they wish they could.
None of this is new as she was horrid to us when she was living here but now we are seeing much, much less of her we have a much clearer picture of the AP and it isn’t flattering. She still tries to play her controlling games with us but now we can walk away from it all and we do, thank goodness. It is a completely different story when others go to visit her in the home and just like before she makes a huge effort and plays the sweet, slightly dotty old woman.
Christmas will be an interesting experience because the AP will be spending hers in the care home. She will not be coming back here not only because we don’t actually want her malign presence casting it’s long shadow over us but we cannot get her back in the same day. She cannot sleep here as the AP is unable to get up and down the stairs and her room is not habitable now, we are slowly regaining our space back. But, in truth she could no longer cope with the general noise and hubbub of the day. She is in a care home for a reason, we can no longer look after her and nor do we wish too. The five and a half miserable years of looking after her have taken their toll on both the LSO and myself at a time in our lives when we should have been free. I am now seventy four and cannot have that time back but what is so very frustrating and what makes me still very angry is the fact that all the AP had to do was be pleasant, accept and enjoy what we had to offer with some grace and we could have rubbed along well. What we endured was the polar opposite. My anger lessens as time goes by but I have no liking for the AP who tried to drive a wedge between the LSO and myself whilst being controlling, conniving, devious and thoroughly unpleasant.
In the meanwhile I have been dealing with the aches and pains that have woken me continually during the nights. I put aside the need to lose weight in order to concentrate on the niggling but nevertheless debilitating minor problems which taken as a whole were becoming a much bigger issue. There has been some success in that area thanks to CBD oil and a ten milligram dose of Amyltriptiline a day which apparently can help nerve pain in some people. It would appear to be the case for me and the pain in my lower back has all but gone which is a massive relief. The CBD oil took a while to have an effect but I generally am improving which is great because I can now look to losing some weight. At the moment I am eating smaller portions, keeping carbs low and endeavouring to not drink alcohol from Monday to Thursday. Is it working? Well not as much as I had hoped but the direction is downwards, just slowly.
Hopefully Christmas won’t cause too much damage but we have our family descending on us and for the first time in some years I am looking forward to it all.
Well, it is just as I suspected, the AP has been pulling the wool over everyone’s eyes and she is being discharged next week from the hospital and will be returning to us. I had my suspicions when we visited a couple of days ago when I realised she was loving all the attention. She kept saying what a dreadful night she had had and how excruciating the pain was but looking at her belied the true situation and a creeping doubt entered my mind that the whole situation had been manufactured by her. Maybe not completely contrived but I think once she realised she had everyone’s undivided attention she began to milk it for all it was worth. We spoke to the consultant yesterday to learn that even at one hundred and one years old there is not much wrong with her apart from arthritis that was now in her knees and some mental degradation. He also said that she was being very economical with the truth and although he understood our situation she did not come under any umbrella that would remove her from our care.
To give the hospital their due they are having her assessed and looking at the possibility of some kind of care package but I don’t think she will be eligible for one which will mean us going down the private care route.
The consultant told us he had suggested to her that a spell in respite care would be good for her as well as give the LSO and myself a break and she refused to even consider the matter saying that she had had extensive discussions with us on the matter. Really! Obviously the LSO and myself weren’t present at these ‘discussions’. So the hysteria, histrionics and dramatic expressions such as ‘this really is the end’ and ‘I know what is coming and I’m ready’ are all just part of the drama queen that is my mother and everything was manufactured just to be the centre of attention. It is devastating to think that my own mother would be so devious, so inconsiderate and so selfish but it has backfired on her. When we visited yesterday I told her the consultant had rung me and then I asked her why she had refused to consider respite care. She completely denied that it was ever even mentioned but her response was too quick and I knew she was lying.
So we had a frank and open chat with her about the fact that the LSO and myself need to have some life before it is too late and after much prevarication, more lies and more excuses with a bit of blackmail and smoke screens thrown in she has reluctantly agreed to let us sort out something that will give us some space and ensure she is looked after. It may not be spontaneous but it will at least allow us to escape occasionally.